by repoulin | May 9, 2022
To bring awareness about rare diseases and to inspire hope in our community, we wrote an open letter and created a video. Rare Disease Day is a global event and awareness day held on 28 February. The goal is to raise awareness and generate change for the 300 million...
by repoulin | Mar 11, 2022
The following presentation was made to the AADC Research Trust community. The goal of the presentation was to provide families with an approach to teaching children with aromatic l-amino acid decarboxylase (AADC) deficiency. We explained how we developed this approach...
