by repoulin | Aug 1, 2022
The event was an AADC deficiency meetup July 19–21, 2022 in Houston, made possible by the AADC Family Network. Ten AADC deficiency families arrived from eight countries, with 32 participants enjoying life and family while having a well-deserved vacation together. With...
by repoulin | May 9, 2022
To bring awareness about rare diseases and to inspire hope in our community, we wrote an open letter and created a video. Rare Disease Day is a global event and awareness day held on 28 February. The goal is to raise awareness and generate change for the 300 million...
by repoulin | Mar 11, 2022
The following presentation was made to the AADC Research Trust community. The goal of the presentation was to provide families with an approach to teaching children with aromatic l-amino acid decarboxylase (AADC) deficiency. We explained how we developed this approach...
