by repoulin | Mar 14, 2022
During a AADC Family Network parent workshop, Richard presented his experience with finding, enrolling, and completing a clinical trial. Also, the results of the clinical trial were shared and how parents can learn more about future clinical trials. The AADC Family...
by repoulin | Mar 13, 2022
Richard Poulin held a presentation describing his experience as a parent of a child who was misdiagnosed with epilepsy and the consequences of it. He also shared his insight on how physicians could have better diagnosed the case better and symptoms to be aware of. It...
by repoulin | Mar 12, 2022
Next Steps When Genetic Testing Doesn’t Give You Answers is part of multiple discussions in the Child Neurology Foundation’s ongoing series that brings together caregivers and health professionals to provide expert advice to the child neurology community. In the...
by repoulin | Mar 11, 2022
The following presentation was made to the AADC Research Trust community. The goal of the presentation was to provide families with an approach to teaching children with aromatic l-amino acid decarboxylase (AADC) deficiency. We explained how we developed this approach...
